Beth's Experience
Beth has suffered from depression and eating disorders since she was 14. She stayed in the McGuinness Unit for six months.
Depression
Just take a few seconds to picture this in your mind; you’re standing inside a tall dark room and no matter how hard you try you just can’t get the lights to switch on. You see figures but all you can think of is that they are going to hurt you, leave you or just reject you. Instead of getting to know these figures and coming up with a plan to get out of the black hole, you just push them away in fear of them getting to know the real you. Just imagine putting up with that for months… even years. Well this is similar to what depression can feel like; it’s a long lonely battle. This is why many people keep quiet about their mental health issues because of the fear they might get judged, it’s not a physical health problem that you can see but it doesn’t mean they aren’t real.
Life in the unit
My stay at the McGuiness Unit was very long and hard; I find it hard recording the first few weeks/months, that’s just because of how bad my depression had got. Some days it was like a never ending nightmare that I couldn’t awake from, whereas others I have kept as memories. During my hospitalisation I made some great friends… all still ordinary people like myself that have just reached a little blip in their lives. Soon enough friends become family in a closed environment, there would always be somebody there to talk to and confide in when you don’t want to talk to staff. However there is one goal which everybody strives for and that is to be discharged. I saw some patients come and go within a week, whereas others were in there the whole 6 months I was, these are the people I miss the most.
Dancing again
Since leaving the unit on April 2nd I have tried to get back to normality. I have gone back to dance, which just recently I won the British isle championships. Dance means a lot to me, I’ve done it since being tiny and when I first got ill with my eating disorder I had to give it up because my body just couldn’t cope with the stresses I was putting it under. This is my biggest achievement of all; being able to dance again. I have missed too much college to be able to go back this year but my plans are to return and finish my second year in September, then off to university I go. Other than that, and the holiday I am going on with my friends. I don’t really have many plans for the future except for keeping myself well.
Stigma
The stigma around mental health is terrible, the words ‘mental health’ does not mean ‘crazy’, one in four people suffer from a mental health illness, that means somebody in your family, your next door neighbour or even a best friend could be suffering. It is important that they seek help as many people can lose their lives through mental illnesses; I know I nearly did, and this is why I want to spread the awareness and stop this disease from damaging any more people. Eating disorders have the highest mortality rate of any mental illness… it’s not a laughing joke now is it? Just because somebody isn’t walking around with a cast on their leg, doesn’t mean they aren’t suffering. Mental illnesses are far more complex and severe than just a broken leg.
Just because you can’t see it doesn’t mean it isn’t there.
Dr Andy Rogers
Dr Andy Rogers is the Head of Psychological therapies at the McGuinness unit, he discusses the benefit of the unit for his young patients.
What does the McGuinness unit offer?
The McGuinness unit is a specialist Adolescent Inpatient ward for young people aged 13 to 18 who require assessment and treatment for a range of complex mental health difficulties including severe mental illness. The service provides day-to-day therapeutic care, as well as education, in a safe and nurturing environment.
For many young people who experience mental health difficulties, the support of those that they know and trust is extremely important in their recovery. Most young people, who experience mental health difficulties will be referred by their GP to specialist Child and Adolescent Mental Health Services (CAMHS). CAMHS, aided by family and school will support the recovery of the young person at home and in the community.
However, for some young people, their distress is so severe and the difficulties they encounter are so complex that they become extremely vulnerable in the community.
At times a young person may feel very unsafe and be at risk of harming themselves or others. Some young people in these circumstances may have received a diagnosis, which is a way of helping them and others to understand their experiences and can give a guide as to what treatment may help their recovery. Young people who come to the McGuinness Unit may have one or more diagnoses such as: anxiety, depression, psychosis, bi-polar disorder, eating disorder or post-traumatic stress disorder. The Young People may also present with distress that leads them to harm themselves (self-harm) or display other concerning behaviours such as aggression, excessive washing or repeated checking.
Many young people do not have a diagnosis at the time of their admission, but often their distress and behaviour is very concerning for them and other people. These young people need to spend some time at the McGuinness Unit so that their difficulties and needs can be assessed and a plan of support and treatment developed.
The McGuinness Unit is an ‘open’ unit, in that the majority of the young people recognise they need support and come to us voluntarily. For a small number of young people who are particularly distressed and are struggling to accept that they require help, there may be a need for them to be kept in hospital against their wishes and prevented from leaving. . This means a young person is detained under a legal order under the Mental Health Act, a ‘Section’. This allows for a young person remain in hospital for a sufficient period of time, to either assess or treat their mental health difficulty. Detention under the Mental Health Act is undertaken with the consent of the young person’s parents or nearest relative.
Who works at the unit?
Our Clinical Team is made up of people from a variety of professional backgrounds including Psychiatrists, Clinical Psychologists, Nurses, Occupational Therapists, Social workers, Arts and Psychological Therapists, Teachers and Dieticians. We also include our Domestic staff, administration staff and management as part of the team!
In order to support young people in their recovery, we provide a range of interventions for them and their families including: building positive relationships with staff and other young people, engaging them in fun activities, education and sport, supporting them in daily living skills such as cooking, budgeting and shopping, and more formal psychological therapies such as cognitive-behavioural therapy, family therapy and art and music therapy. These may be delivered individually or in a group. While medication is used to treat some illness in young people, it is often not the first line of treatment, and when used, is always supplemented by these other interventions. We also have an onsite education provision ‘Cloughside College’ that provides formal education tailored to the needs of the young people in our care.
Some of the guiding principles of the McGuinness unit highlight that the young people we work with are not ‘mini-adults’, are still learning and developing and are able to achieve recovery. As such, the young people we work with are treated as typical adolescents, who happen to experience mental health difficulties, often as a result of their coping resources not being fully developed or having become overwhelmed. We also believe that Young People should spend as short a time as necessary in hospital. This means that right from the start of their time with us, they are supported in a developmentally appropriate way to return to challenges and rewards of their daily lives as quickly as possible. This involves helping young people to build their coping skills, confidence and resilience, improve relationships with those in their lives that can support them and build a lasting plan for the future. If we can help to achieve this, we hope to significantly reduce future distress, increase the chance of the young people being able to manage the ups and downs life more effectively and ultimately have a positive and productive future.
Vicki Ray
Vicki Ray is an occupational therapist, who works with the teenagers at the McGuinness Unit.
Occupational Therapy
My role as the Occupational Therapist (OT) is to look at how the young person’s illness affects them on a day to day basis. When young people are admitted to the ward, I introduce myself and explain what my role is all about. Many young people have not worked with an OT before and it is important for them to understand how I may be able to help them as part of their treatment and begin to build a therapeutic relationship with them.
When in the unit, the young person is given time to speak to nurses and doctors about their condition but with me, I try and find out more about that individual such as their hobbies, interests, likes and dislikes and what makes them tick. I aim to find out how the experience of the illness affects the young person.
Throughout the occupational therapy sessions I aim to help change the way the young person sees the outside world and how they fit within the world and that it’s not necessarily a big, bad, scary place. It’s all about getting to know the young person as an individual.
I explore how the young person’s illness may be affecting their daily routine. Their illness can often affect how they manage on a day to day basis completing everyday tasks, which can include managing a routine with school/college, seeing friends/family, engaging with the community and social activities such as using public transport. By attending the family home I can gain feedback from the family and see how the young person copes at home.
The Road to Recovery
Use of activities is an important part of the young person’s road to recovery. By getting to know the individual I can incorporate their hobbies into activities which they will do on the ward. By focusing on a task, this will often distract the young person from the negative feelings or symptoms of their illness.
Activities can often involve art work, board games and console games. By monitoring the activity sessions, we can assess how the young person is coping by looking at ability to follow instructions and concentration span of the young person. This helps us learn more about that individual and how we can tailor activities further to help them recover.
When a patient is admitted their general mood is low and they can often feel isolated. By using different activities involving something of meaning to the young person this can help them feel more positive. I would tailor the activities to suit the needs of the young person. Throughout this process I will talk with the young person and help them recognise their anxious feelings and how to deal with them.
On reflection of the activity the young person will often realise that the task was not scary or difficult which will result in anxiety levels decreasing and confidence levels increasing. By the time the young person leaves the unit their confidence levels have increased, they are more sociable and will initiate conversation more. It’s all about challenging some of those anxious thoughts the young person has and changing the way they think about certain situations they may feel are scary.
A large part of my role is facilitating, with other therapists, a range of therapeutic groups for young people. We offer a wide range of groups outside of the academic term including a recovery group, meal preparation groups, baking, social groups, health promotion, current affairs and art based groups. These groups are encouraged as positive social activity can help aid recovery.
Pete Croft
Pete Croft is a Mental Health Nurse at the McGuinness Unit, he talks about his experiences.
No two days the same
I’ve been a Registered Mental Health Nurse at the McGuiness Unit for four years now and I’ve never had two days that are the same. When patients come through those doors you have to be open-minded and ready for anything that might come your way.
When a new patient arrives they can be extremely frightened with the idea of arriving in this strange place, so part of my role is to ensure that they have an easy introduction to the unit and try and make it seem less like a place they’ve been forced to come to. I like to think that this helps them settle in; despite the fact they may be distressed or troubled due to their mental health.
After showing patients and their families around the building, my focus is to complete the admission process. I will ask a doctor to undertake a physical examination, provide patients with details of their stay, such as what to expect when being a patient here, when they have their one to one session and who their named nurse is. Once they’ve settled in, I have to make sure all the clinical admission paperwork associated with a new patient, such as liaising with the pharmacy for medication, mental state exams and Mental Health Act paperwork is done. The paperwork side of things can be very time consuming, but it’s needed to complete a comprehensive assessment for each patient.
The nursing support and care I provide to the patients whilst they are at the McGuiness Unit varies every day and that’s what makes it interesting. I can be spending time with a young person, discussing their inner most thoughts and concerns and helping them to develop some resilience and coping strategies, then the next minute I can be managing the aftermath of a serious incident where a young person needs support to manage their emotions. Once that is dealt with I can be organising activities for patients in conjunction with the Occupational Therapy Team or attending reviews to discuss progress of individual patients. It changes minute-by-minute and can be a challenging, but it really is a rewarding job.
Vulnerable patients
Being there for the patients who at times are very vulnerable, supporting them when they may feel distressed and can harm themselves or others is a big part of what we do here. These situations can be quite tense but the most important part of this role is being there for someone when things aren’t going well. We have a number of people who self-harm and dressing their wounds has become a part of my role that isn’t something I enjoy, but I know that the effort I make after the event with that patient is something they need. The worst thing would be to just be negative with the young person and not allow them to talk about their problems that have led to them self-harming.
A lot of the people who come through here find a real comfort in someone just simply lending them an ear and allowing them to talk about their issues. As a nurse, something as simple as talking and being a friendly face can help develop a flicker of hope that their situation can get better. When you see those young people you’ve helped making progress it’s something that makes you come back into work each day.
In the documentary you can see me trying to lift the spirits of one of our service users with a bit of humour, and through simply telling a joke (albeit a bad one!) you can change that person’s perception of how their day is going or how well their treatment is progressing. I know that the time I take to listen to their concerns, or chat to them about daily life in the unit can really make a difference.
Being a Mental Health Nurse
Working in Mental Health and being a registered nurse wasn’t actually my first career choice… before this I was a policeman for Greater Manchester Police for a couple of years. There are aspects of both jobs that are similar, especially when you have to deal with confrontation. The unit has a number of people who suffer from mental health issues that could lead them to act aggressively towards other service users or patients, and part of my role is to ensure that those instances don’t escalate. I’m sure that if you asked some of the young people in the unit they would probably say that we are trying to control them, but the reality is I’m there to protect their welfare whilst they receive care, and although that does mean having to restrain people or be authoritative at times, it is only done with their best interests at heart.
Being a mental Health Nurse isn’t a job you get into for the money, you do it so you can help people get better, and seeing the progress young people make from when they come in to when they leave, whatever length of time that is, makes you proud of what you’ve done to help them. The job can be stressful, but at the same time the reward of helping someone who hasn’t really begun their life and getting them back on track is what we’re all here for.
http://www.bbc.co.uk/iplayer/episode/p01b871m/Dont_Call_Me_Crazy_Episode_1/
http://www.bbc.co.uk/iplayer/episode/b036qjt5/Dont_Call_Me_Crazy_Episode_3/
Can be triggering for some- self harm, depression, eating disorders.
Twitter:
#dontcallmecrazy
@mindcharity
@TimeToChange
@bbcthree
@CherieGoddard
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